If you carry one thing with you today, let it be this: you are beautiful, you matter, and you are loved.

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Mask up, love one another, and stay alive for one more week.

  • Keld [he/him, any]@hexbear.netEnglish
    4·
    18 days ago

    Yeah the t7-tsh is the standard thyroid panel, but you’re an immunocompromised person with cancer and a restricted diet, you’re the poster child for blood tests. Beat the drums for your own healthcare is all I can say, advocate for yourself. Send emails, call every office, make yourself a huge nuisance, and don’t feel bad for even a second. This is your health and they are utterly failing. These doctors should all be fired if they’re not willing to help you, but sadly I’m not in charge of hiring and firing.

    • DisabledAceSocialist [comrade/them]@hexbear.netEnglish
      5·
      18 days ago

      Thanks. I’ve got a blood test for tomorrow, as far as all the other things I’m just tired. It’s too exhausting dealing with being ill, fighting benefit appeals, fighting for meds and appointments, and constantly having to scrounge and beg repeatedly for food on here. So I can’t mount a huge fight over this but i’ll ask for an appointment. The endo is shut today but I’ll ask for an appointment when they reopen. It’s so hard now though, another problem with the NHS is specialists always try to give phone appointments rather than face to face now. It’s much harder to have a proper discussion like that, and I don’t feel I can say everything I need to say as I’m worried about people like my landlady and her guests overhearing my private medical details.

      • Keld [he/him, any]@hexbear.netEnglish
        2·
        17 days ago

        Part of being a zealous advocate for your own health is being willing to be open about your needs and symptoms. You have nothing to be ashamed of with regards to your health. And you need to be able to say what you need in the context you are in. If you can only communicate by phone you need to be able to say what you need over the phone. It’s not ideal and it may feel humiliating, but it’s the hand we are dealt as patients. Duck into your closet and call when your landlady isn’t home if that’s what you need to do, but do call and do say what you need.

        I know that’s all easier said than done.