Hello everyone, I’ll be hosting the megathread while un_mask_me is out.
I completely forgot I had to post it until just now.
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Mask up, love one another, and stay alive for one more week.
this is a relatively good resource for living with pots
Your doctor is being neglectful by only suggesting exercise. Many people with POTS also have other health conditions that might get worse with exercise (like ME/CFS).
The 3 main things other than exercise that can possibly relieve symptoms are:
Thigh high compression socks that push your blood to your upper body. Knee high aren’t as effective but often a lot cheaper so could still be worth a try.
Taking 8 grams of salt per day combined with drinking at least 2,5 liter water to increase your blood volume.
Very low dose beta blockers that slow down your heart rate. If you have low blood pressure then you should be careful with using beta blockers.
These solutions all don’t work for everyone but there’s usually at least one that helps relieve symptoms. The salt thing is obviously the cheapest and most accessible. If exercise doesn’t make you feel worse then I’d still try it but on the website I linked it suggests to start really slowly and work your way up. Taking rest days should really not be an issue and might even be better for you.
yea my mum has ME/CFS, no thankies x3 currently looking into a possible *EDS diagnosis, but theres sooo many EDS variations
im aware of most of this (and put a fair amount of it into practice), but thank you!!! just wanted to complain about the medical system from the viewpoint of “i know this isnt what should be happening”
Sorry if this was unwelcome unsolicited advice (I never know if I’m guilty of that but I’d like to know if I am!) I any case I understand the struggle with horrible medical systems and I think you’re right that doctors try to point to something to make it seem like it’s your fault that you’re struggling because they can’t do their job properly.
it was welcome advice, promise