Hello everyone, I’ll be hosting the megathread while un_mask_me is out.

I completely forgot I had to post it until just now.


As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:

“Disability” is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.

Mask up, love one another, and stay alive for one more week.

  • Hiya, is it alright if I vent about some additional mental stuff I just realized a bit ago (even though I prob should’ve realized it much sooner)? Just wanna make sure I’m not intruding, don’t think I’ve posted here on any of my old accounts

  • Keld [he/him, any]@hexbear.net
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    2 days ago

    The price of my meds went up. Roughly 240 american dollars for my monthly dose of just one of my pills, and these used to be my cheap meds. Mumble grumble. I’ll manage. But damn.

  • Kuori [she/her]@hexbear.net
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    3 days ago
    cw drugs/brief discussion of suicide

    i know we don’t lean too heavily on cws here in the disabled mega but i felt it was worth being extra conscientious just in case. anyway turns out quitting weed and actually taking my adderall has put a serious dent in my depression. i don’t even think i want to kill myself anymore? my social skills are sort of coming back? wild shit

    now i just gotta deal with the regret of wasting the last 20 years shackled to various substances and dealing with regret is kind of my bag, baby, so we’re in promising waters!

    as always, i wish you all the very best and hope for good things to come to you, whatever that may mean for you

    • DisabledAceSocialist [comrade/them]@hexbear.net
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      2 days ago

      Psychiatrists are all useless. I saw a book advertised called “Psychotherapy won’t help you: Mental Health, Mind Control, and the Exit Door You Were Never Meant to Find” by Marina Karlova, but I haven’t read it.

      • TheSpectreOfGay [hy/hym, she/her]@hexbear.net
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        2 days ago

        yea, i have been muuuuch more successful in improving my mental health by accepting im disabled and surrounding myself with kind and understanding people.

        buuuut that doesn’t really work for capitalism since i’m not working, so i just need them to diagnose me so i can get aid, but they just keep on going “aw jeez girl ur kinda cooked huh”

        • DisabledAceSocialist [comrade/them]@hexbear.net
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          2 days ago

          Same here. All the therapy I received just consisted of being told to write lists of why I shouldn’t feel depressed or anxious and look at those reasons when I feel bad, or draw a picture of what I’m feeling today, or do a pointless guided meditation. Absolute rubbish and like you I only continued with this crap for the full 6 months to help my benefit appeal.

    • Kuori [she/her]@hexbear.net
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      3 days ago

      mental health’s most powerful soldier > the pitiful forces of “psychiatry”*

      *latest fad kelly

      (sorry if this is too cavalier btw, i know it can be grueling to find a mental health professional that understands you well enough to help)

  • DisabledAceSocialist [comrade/them]@hexbear.net
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    3 days ago

    I got the results of my scan for the shockwave treatment today. The damage to my leg and ankle is even more extensive than first thought. And they said they need to do another scan to do the foot because they think the damage extends further into the foot. The appointment for that scan in on Wednesday then I’ll hear when the shockwave therapy will begin. But this will be more expensive and eat into the donations I was given for the shockwave therapy. I’m also not having much luck getting donations for my transport situation. I need £400 and received a total of £61, which I’m grateful for of course, but because the car isn’t fixed and I had a hospital appointment today I had to spend £24 of it getting taxis there and back. I have another hospital appointment in a hospital the next town over tomorrow, I’ll have to use the rest getting a taxi there and back. That puts the fund for the car repairs back down to zero and means I still have no transport to my future hospital appointments. What am I going to do? You have to pay for hospital transport anyway and it’s too late to book it for my next upcoming appointments. I’ve already had to cancel an endocrinology appointment because of this. Why does everything always have to be so difficult and expensive?

    I wish they would just legalise assisted suicide here. I hate the hypocrisy of them claiming they care too much about us to let us die, while they don’t care enough to make sure we can access enough food and medical treatment.

    • TheSpectreOfGay [hy/hym, she/her]@hexbear.net
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      3 days ago

      they’re like, “we care about you sosososo much that we’ll allow you to suffer to death! isn’t that awesome!”

      i think people, especially non-disabled people, have this weird thought that being alive is fundamentally better than being dead and i dont really get it!!

  • roux [they/them, thon/thons]@hexbear.netM
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    3 days ago

    Positivity update but I got an apartment locked in. I got a ton of stuff to do ahead of time though. After the last 48 hours, I’m honestly looking forward to getting out of this shitty situation. Shit was perfectly fine 3 weeks ago and idk what the fuck happened. Roommate applications are now open for goth metalhead socialists though. But ya gotta like deathcore. No hate.

    Tiny caveat about the apartment that I do need to figure out but I want to run ethernet directly to my computer so I no longer have to deal with Linux wifi shit and idk where the drop is.

    • mendiCAN [none/use name]@hexbear.net
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      3 days ago

      lol i would totally live with you as we’re going thru eerily similar shit… but our musical tastes would require we knife fight at sundown… (imma bluegrass fan, it’s in the bylaws).

      anyway good luck, i at least know how painful it is, what you’re going thru, as I’m currently going thru it too. let us do our best together (but out of earshot)!

  • Moss [they/them]@hexbear.net
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    5 days ago

    I really, really fucking hate that neurotypicals have latched onto the “you people can’t do anything” tweet because it just gives them an excuse to be ableist by referencing funny meme. I also hate that neurodivergents are using it as motivation because it is literally just shaming people for being disabled. You are not pathetic for being affected by your disability.

  • DisabledAceSocialist [comrade/them]@hexbear.net
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    5 days ago

    It’s so evil how something going wrong in life puts you on a downward spiral where everything just gets worse and worse. Get an illness? That’s not enough on its own, now you also have side effects from medications and poverty from being unable to work. And then being so poor leads to more bad outcomes, worse health, malnutrition, homelessness or insecure housing. Or, for instance, suffer a traumatic incident? That’s not enough on its own, now you develop PTSD and struggle to function, your whole life goes down the pan. Have a poverty-stricken childhood? Now you’re less likely to get a good education, less likely to earn enough money and even grow up with lower cognitive development, more mental health issues and more long-term health problems, all of which affect your life outcomes. And the lower you sink, the more society despises you and the less of a support network you have. Why is our society set up to make people’s lives worse when they have problems already?

    Oh, and I seem to have developed incurable BO. For the past few days, my armpits stink no matter how much I wash them or how much deodorant I use. Is this an age thing? I was already an old hag, now it seems I’m becoming a smelly old hag.

  • Beetle [hy/hym]@hexbear.net
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    5 days ago

    I’m cursed in that I can only asleep while scrolling the internet (usually lemmy). But the internet is full of distressing content and sometimes I encounter something that makes me so distressed that I can’t fall asleep at all. Real gen Z shit.

    • Keld [he/him, any]@hexbear.net
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      5 days ago

      I sometimes just scroll pictures of animals doing cute shit or videos of stuff I like as an alternative, but it doesn’t feel right. it’s missing something. I shift to the the unfiltered garbage internet with all the upsetting stuff when I try to just have a good time. I curate and it ruins it.

      • Keld [he/him, any]@hexbear.net
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        5 days ago

        Broth cooked rice with veggies. spices and usually some kind of meat (In my case soy chunks). Also dried fruits and nuts if that’s your game (It isn’t in this case, because I don’t have any this time) There’s roughly a billion varieties so narrowing it down is tricky. What I made is basically plov (One of the many varieties) with some swapped spices and no meat. So you have some sauteed carrots and soy chunks with a bunch of onion, you make some broth, wash some rice, and then you sort of boil the whole together in one pot with a ton of garlic and spice and you get my (Current) take on pilaf. It’s one of the best things you can make with one cooking vessel imo.